This is addressed to “ALL CITY, STATE HEALTH COMMISSIONERS, HUMAN RIGHTS AGENCIES, UNITED NATIONS HUMAN RIGHTS, NATIONS HEALTH ORGANIZATIONS, AND TO THE FULL HOUSE COMMITTEE ON OVERSIGHT AND GOVERNMENT REFORM ( Please let this be part of your review 9/21). READ MORE
Thank you in advance for your time.
We do not have time, for government healthcare reform, or have a chance to wait on the investigation into the corporate greed e.g. Mylan. We are seeing some parents resorting to syringes that are NOT fast enough to reverse the airways from closing. 2 minutes are too long. Parents are not EMS trained medical professionals. They do not have oxygen tanks with them or know how to check vital signs if the drug is working with risks of overdose and being placed into CV.
There are only a few minutes between life and death. I know this first hand and I want to make sure our experience and pain, help to make change for the next. Yes, we have many making changes in restaurants and schools, but it should already be there. Just like a license is needed to sell liquor, anywhere when food is served, there should be training and required on hand life-saving drug to help those who are facing anaphylaxis. This needs not law, but “enforcement”. Annual registration and documentation of on-hand life-saving drugs to help this in need. Does a bar that allowed someone who got into a car and killed someone, to holding responsibility? Please let’s make common sense and awareness for all. You want to sell food, you have a vendor license you should be required to keep such trained and on hand. Now the need for a prescription, “has to go” to make that happen.
“PLEASE” look at this experience due to lack of competition and hardship to passing a positive change. We need to make Life-saving drugs a “MUST” to being readily accessible and affordable, and safe. ( e.g. Over the counter) Time is the difference between saving a child’s life. The hard part is advocating how to recognize Anaphylaxis to “non-trained” individuals outside of places that “sell” food or like schools having to act the same. That each of us do daily, endlessly.
Provide a standing – order prescription for all as a step to making reform access to this life-saving drug, has to happen.
Just like we are seeing increased overdose-related deaths. The increase in Allergy related deaths is taking place as well. This is a shared crisis for public safety.
I have always believed within hard times, good follows. Miracles are sometimes disguised in painful struggling times. We need to help all vulnerable people facing such harm.
I believe working “with” drug companies like e.g. kaléo, Inc. Auvi-Q and others as they become available, we can create “common sense” reform on accessibility, not only price. The same maker kaléo, Inc. is the maker of Evzio, Evzio is manufactured for kaléo, Inc., of Richmond, Va. Evzio was approved April 3, 2014, by the FDA approves new hand-held auto-injector to reverse opioid overdose.
For those in the Food Allergy Community, the product looks very familiar.
Earlier this year, U.S. Rep. Elijah Cummings, D-Md., called on one generic naloxone manufacturer, Amphastar Pharmaceuticals Inc., which makes a popular version as a nasal spray, to explain the drug’s price increases. Same to be held on September 21 with Mylan.
“In May 2014, a 10-dose pack cost the Baltimore City Health Department roughly $190,” Cummings said in a released statement in March. “Guess what? Today, it costs more than $400 for a life-saving drug.”
“Rep. Cummings Rips Pharma Company For Price Gouging On Heroin Overdose Drug.
WASHINGTON — In his opening remarks at the Full House Committee on Oversight and Government Reform hearing on the heroin epidemic, Rep. Elijah Cummings (D-Md.) slammed the pharmaceutical company that makes the overdose antidote naloxone for profiting off the crisis.
“We can no longer allow drug companies to keep ripping off the taxpayers for life-saving medications,” Cummings said. “Cities all around the country have recognized the need to equip their first responders, police officers and public health officials with naloxone — a drug that can reverse opioid overdoses in a matter of minutes.”
Because of those life-saving properties, the medication has become essential in the public health response to the rise in overdose deaths. State after state — including places like Kentucky and New York — have passed laws making naloxone available without a prescription. Chains such as Kroger and CVS recently announced that they would be selling it essentially as an over-the-counter medication.
Cummings said Amphastar Pharmaceuticals Inc., which makes naloxone, has jacked up prices for the antidote as demand has increased. Evidenced-based public policy, he said, has been “undermined by corporate greed.”
“As more first responders began using this drug, the company that makes it, Amphastar, began to increase its prices by staggering amounts,” Cummings said. “In May 2014, a 10-dose pack cost the Baltimore City Health Department roughly $190. Guess what? Today, it costs more than $400 for a life-saving drug.”
In October, Dr. Leana Wen, Baltimore’s health commissioner, issued a blanket naloxone prescription for all 620,000 residents; Baltimore has more than 20,000 active heroin users. “We have to save lives,” she told the House committee. “Naloxone should be part of everyone’s medicine cabinet.”
We are asking “Epipen rapid response device or a like product Epinephrine fast acting device to be part of everyone’s medicine cabinet” too. “WE NEED TO SAVE LIVES.” WE ARE JOINING in this public need, PLEASE. Both should be made available.
Please for all of our angels that are named below and all the grieving family members and friends we ask you to please add “Epinephrine” to your efforts during this public crisis. We do not want to add another name below. These are only public, many remain private. To many lives. In many places around the world this medication can be found over the counter. I request that you scroll to the very end of all the names listed below, the length might take sometime. Read a few stories of these beautiful souls, lost to soon. My son is Joseph DeNicola, he was 7 on Halloween 2014.
We have been requesting for such availability for years. In addition, why price increases have been happening, twice within the same year? Public school is not free for our children. For some not an option to afford to attend. No price on their lives. That is why we need help.
Schools depending on state, all have stocking laws. There seems to be confusion between senators. Stocking laws can be either “allowed” vs.”required”. We prefer “required, enforced and inspected annually due to expiration dates”. School Access to Epinephrine Map. Can be confusing we know it needs to be reformed as “Required”
“Baltimore, this life-saving drug has also had to be rationed in some places as the price increases and demand soars. So the city health commissioner in Baltimore, Dr. Leana Wen, took the extraordinary step of issuing a standing order prescription for all city residents, resulting in increased access to naloxone by allowing pharmacies to dispense it without a personal doctor’s prescription.”
“We in Baltimore have launched aggressive overdose campaign,” Wen told ABC News. Baltimore is hardly the only city grappling with opioid abuse. U.S. deaths from heroin overdoses have spiked in recent years, tripling between 2010 and 2014, according to the U.S.Drug Enforcement Agency‘s National Heroin Threat Assessment Summary released earlier this year.
We have been seeing an increase over the years, last reported 1 and 13 people are at risk of Anaphylaxis. It has been researched that a mild reaction can at anytime be a severe. Anaphylaxis is the term used for a severe, potentially life-threatening allergic reaction that can occur within seconds or minutes following exposure to an allergen. Until now, data on trends in anaphylactic deaths—or even the number of yearly deaths from anaphylactic shock—has not been well-defined. One reason: unlike countries such as the UK, the U.S. doesn’t maintain a national registry of anaphylaxis deaths. – “Anaphylaxis has been dubbed ‘the latest allergy epidemic,’” said Dr. Jerschow.
“The U.S. and Australia have some of the highest rates of severe anaphylaxis among developed countries. We hope these results bring increased awareness of the need for a better understanding of anaphylaxis deaths.” – Elina Jerschow, M.D., M.Sc. – See more at: http://www.einstein.yu.edu/news/releases/1043/comprehensive-study-of-allergic-deaths-in-u-s–finds-medications-are-main-culprit/#sthash.DFBSVHN9.dpufPlease read “Food Allergy Epidemic: A Breaking Point “
Food Allergy Epidemic: A Breaking Point
I will always consider November 2014 as a breaking point for food allergy and anaphylaxis, the time when everyone who loves someone with life threatening allergies must come together and make a difference to fight back this epidemic. Three deaths due to food allergy and anaphylaxis in one month, three devastated families and communities, three lives tragically lost too soon.
We remember all we have lost and our community has suffered to many. Parents/family members of the community have comforted so many of us. I can speak of that personally. Read more..
My son Joseph DeNicola, age 7 was one of the three. My son will never need this drug ever again. I will make sure to help others that do, in my grief. No child or parent should have a life of pain as I now do. It is a different world.
Now meet the angels that publicly shared their stories. There are many more.
“Make yourself familiar with the angels, and behold them frequently in spirit; for without being seen, they are present with you.”
Thank you for reading and sharing. The more we talk about it, the more others around us will too. If you scroll down to the bottom of this page, you can view some of their pictures.I would like to take this time and remember some of the recent and not so recent deaths that have occurred from food allergies. These are just some of the reported cases. It is very sad that there have been so many and yet we have not heard about most of them.
This list was updated on August 31, 2016.
Food Allergy Deaths in 2016:
Breyton Horomona, 15, suffered a severe allergic reaction and died after eating calamari. Full Story
Paul Wilson, 38, died after eating a dish that contained peanuts. Full Story
Javier Avina, 10, died from asthma possibly caused by his peanut allergy. Full Story
Victor Lee, 10, tragically died after suffering an allergic reaction. Full Story
Bruce Kelly, 22, died after eating chocolates containing peanuts.
Food Allergy Deaths in 2015:
Katherine Schaefer, 18, died from an allergic reaction that led to a severe asthma attack. Full Story
Shalev Hazan, age unknown, died after eating a granola bar containing nuts. Full Story
Annie Legere, 13, died from anaphylactic shock after an unknown allergic reaction, likely to something she ate, according to her doctors. Full Story
Cody Steven Kimball-Godfrey, 17, died from an allergic reaction. Full Story
Cameron Wahid, 7, died after eating a dish that may have contained dairy. Full Story
Simon Katz, 16, died from an allergic reaction to peanut butter. Full Story
Andrea Mariano, 18, died from an anaphylactic allergic reaction. Full Story
Amanda Thompson, 50, died after having an allergic reaction to a Sorbet. Full Story
Dylan Hill, 18, died after eating at an Indian restaurant. Full Story
Maisie Durant, 21, died after eating a cereal bar containing nuts. Full Story
Shahida Shahid, 18, died from an allergic reaction after eating at a local restaurant. Full Story
Food Allergy Deaths in 2014:
Caroline Lorette, 14, died from an allergic reaction to dairy. Full Story
Brandon Dixon, 13, died after eating a candy bar given to him at school. Full Story
Deborah Mary Molloy, 52, died from an allergic reaction to lentils. Full Story
Derek Landon Wood, 11, died after eating a cookie from a local grocery store. Full Story
Casey Ryan, 29, died from an allergic reaction to peanut oil. Full Story
Edward Alfred Horan II, 24, died after exposure to a food he is allergic to. Full Story
Jaime E. Mendoza, 16, dies after allergic reaction to peanut butter cookie. Full Story
Chandler Swink, 19, dies from an allergic reaction to peanut. Full Story
Joseph DeNicola, 7, dies after suffering an allergic reaction on Halloween. Full Story
Dillon Mueller, 18, dies helping his best friend with yard work when he got stung. Full Story
Jack Burden, 18, died from a severe allergic reaction. Partial Story
Paul Wilson, 38, died from anaphylaxis. He had a peanut allergy. Full Story
Lydia Lavoshan, age unknown, died after having an allergic reaction to tahini, which contained sesame. Full Story
Edward Debbage, 8, died from an anaphylaxis reaction. Allergies to various foods. Full Story
Connor Donaldson, 12, dies after eating food containing peanut. Full Story
Food Allergy Deaths in 2013:
Elin Wahlgren, 16, died from an allergic reaction after eating tacos. Full Story
Ronak Warty, 10, died after drinking a wrongly labelled drink containing dairy. Full Story
Cody Hardy, 17, died from an allergic reaction to milk. See comments section for full story.
Marcus Terranova, 8, died from an anaphylactic reaction caused by an unknown food allergy. Full Story
Dora Mae Coburn, 68, died from an allergic reaction to bananas. Full Story
Abbie Benford, 15, died from an anaphylaxis reaction. Full Story
Emma Slone, 14, died from a reaction to a nut based sauce. She had a peanut allergy. Full Story
Andrew Turner, 35, died from eating bread containing nuts. Full Story
Shimmer James, 6, died after an allergic reaction to peanut. Full Story
Marcus Sweet, 46, died after an allergic reaction to coconut. Full Story
Connor Donaldson, 12, died from a suspected allergic reaction from nut allergy. Full Story
Giovanni Cipriano, 14, died from an allergic reaction to peanuts. Full Story
Derek Stephenson, 31, died from an allergic reaction after eating a curry dish containing peanut. He had a peanut allergy. Full Story
Ethan Williams, 14, died from a suspected tree nut allergy. Full Story
Natalie Giorgi, 13, died from an allergic reaction to peanut butter. Full Story
Mason Wight, 11, died from an allergic reaction. Partial Story
Jackie Scott, 35, died from an allergic reaction caused by peanut allergy. Full Story
Tanner Henstra, 11, died from an allergic reaction to peanut butter. Full Story
Adrian Gutierrez, 8, died from a possible reaction to milk. Full Story
Maia Santarelli-Gallo, 12, died of an allergic reaction after eating ice cream at the mall. Full Story
Cameron Fitzpatrick, 19, died after eating a cookie that contained peanut oil. He had a peanut and tree nut allergy. Full Story
Faith Tolbert, 2, died after from an allergic reaction to peanut. Partial story
Food Allergy Deaths in 2012:
Danika Rae, 17, died from complications related to an airborne allergic reaction and asthma attack. Full Story
Myriam Ducre-Lemay, 20, died after kissing her boyfriend that had eaten peanut butter. Full Story
Michael Saffioti, 22, died from dairy allergy after eating oatmeal containing dairy. Full Story
Jack Levee, 17, died from a severe allergic reaction and a asthma attack. Full Story
Jack Irvine, 15, died after eating a cookie containing nuts at camp. Full Story
William Luckett, 15, died after eating Chinese takeaway. He had a peanut allergy. Full Story
Ethan Thomas, 11, died from an allergic reaction to curry. He had a nut allergy. Full Story
Natalia Green, 17, died from an allergic reaction to chicken satay containing peanut. Full Story
Diallo Robbins Brinson,15, died from of an allergic reaction after eating a cookie. Full Story
Amaya Seraton, 8, died from an allergic reaction. Details are unknown. Full Story
Ammaria Johnson, 7, died at school after being exposed to something containing peanut. Full Story
Food Allergy Deaths in 2011:
Raymond Cho, 16, died after eating a cookie in class that contained walnuts. Full Story
Efrat Chen, 26, died after eating a dessert at a Tel Aviv restaurant. Full Story
Hayden Wileman, 9, died after eating a cereal. He had an unknown peanut allergy. Full Story
Jharell Dillard, 15, lost his life after eating a chocolate chip cookie, which unknowingly contained nuts. Full Story
Tyler Cody Davis, 20, died from an allergic reaction after eating at the KSU Campus Dining Hall. Full Story
Christopher Smith, 17, died after eating takeout food from a Wirral, England restaurant. Full Story
Veronica Cirella, 8, died from allergic reaction. (undisclosed food allergy and cerebral palsy) food fed at home by mother (under investigation) Full Story
Mathew Lee, 26, died after eating a salad that contained nuts. Full Story
Food Allergy Deaths in 2010:
Ashley Frangella, 20, died from an allergic reaction to milk. Full Story
Megann Ayotte Lafort, 6, of Montreal died from asthma attack that is believed to be caused by a food allergic reaction. Full Story
Katelyn Carlson, 13, died after eating Chinese food with her class. Full Story
Yla Aquino, 17, died on prom night after accidentally digesting peanut butter. Full Story
Poppy Harvey, 19, died after unknowingly eating a cake that contained peanut. Full Story
Kevin Edouard, 21, died from suspected peanut allergy after eating on a cruise ship. Full Story
Emma Egerton, 18, died from takeaway curry. She had a peanut allergy. Full Story
Darren Taylor, 44, died from unknown fin-fish allergy. Full Story
Charlie Fidler, 8, died after an allergic reaction at a football barbecue. He was allergic to eggs, milk, wheat and certain nuts. Full Story
Molly Giles, 10, died from one spoonful of curry. She had a nut allergy. Full Story
Molly Dyer, 13, died from curry takeout. She had a nut allergy. Full Story
Food Allergy Deaths in 2009:
Danny Macpherson, 21, died from an allergic reaction after eating Indian takeout. Full Story
Robert Anderson, 15, peanut, tree nut, egg allergy and asthma. Treated as asthma but later identified as anaphylaxis. (unconfirmed report) Full Story
Food Allergy Deaths in 2008:
B.J. Hom, 18, died from an allergic reaction while on a family vacation. Full Story
Andrew Michael Smith, 8, died from an allergic reaction while celebrating super bowl Sunday with family. Full Story
Daniel Sargent, 30, collapsed after taking a bite of a chocolate chip cookie. Full Story
Rodney Hawkins, 35, died from shellfish allergy after being served wrong. Full Story
Dexter Skinner, 16, died after eating a chocolate bar. He had a peanut allergy. Full Story
Christopher Gould, 14, died after eating a cashew. Full Story
Mark Nicholson, 28, died from peanut allergy after eating chili burgers. Full Story
Angus Myers, 32, nut allergy, died after eating take away curry. Full Story
Elizabeth Hoborough, 39, died days later after eating prawn soup. Full Story
Carol Lynn Winston Kiener, 66, died from a peanut allergy. Partial Story
Deja Vacey Hay, 7, died from milk allergy after drinking juice. Full Story
Paul Anthony Thurston, 30, died in jail when served a sandwich containing peanut butter. Full Story
Food Allergy Deaths in 2007:
Nathan Francis, 13, died after given a lunch of beef satay at camp. Full Story
Karim Oughton, 13, died after eating a Brazil nut. He had never had a reaction before. Full Story
Carley Janelle Kohnen, 13, died from a burrito. She had a peanut, egg and milk allergy. Full Story
Grant Freeman, 38, Collasped and died after eating a tomato entree. He was allergic to peanuts, tree nuts, eggs, seafood and chicken. Full Story
Mohsen Hussain, 9, died after having a sweet from the pick and mix candy section. He had a nut allergy and asthma. Full Story
Jessica Cordoroy, 10, died after eating a pie at a restaurant. She had a peanut allergy and asthma. (unconfirmed story)
Stephanie Faulkner, 14, died from a dish at a restaurant that unknowingly contained nuts. Full Story
Kylie Lynch, 20, died after eating a dessert at a cafe that contained nuts. Full Story
Francesca Sanna Mimmy, 19, Collasped and died minutes after brushing her teeth. She had several food allergies. Full Story
Michelle Bray, 21, died from seafood allergy. She had a severe anaphylactic reaction to a dim sim and collapsed. Full Story
Food Allergy Deaths in 2006:
Emily Vonder Meulen, 13, died at the mall after eating a sandwich she had eaten many times before. Full Story
Amber Norman, 12, died after eating a sweet treat in school. Full Story
Paul Derrick Howard, 16, died from a sesame allergy most likely contained in a cereal bar he had eaten. Full Story
Brent Schivley, 16, died from a peanut reaction after eating a chocolate chip cookie. Full Story
Jane McVeigh, 17, died from nut allergy after unknowingly eating chicken satay at a birthday party. Full Story
Food Allergy Deaths in 2005:
Gina Marie Hunt, 14, died after having an allergic reaction after eating Chinese food at the mall with her friends. Full Story
Christina Desforges, 15, died after kissing her boyfriend, who had just eaten a peanut butter snack. Full Story
Thomas Schatten, 43, died an hour later after receiving treatment for his peanut allergy from an alternative medicine practitioner. Full Story
David Joseph Boutot, 17, died from drinking a protein shake that contained whey. Full Story
Kailey Brianna Bowles, 7, died from a taste of hot cocoa in her room. She had a milk allergy. Full Story
Alison Armstrong, 11, died after eating a candy apple at the Grants Pass, OR Boatnik Festival. According to friends and family, Alison tasted peanut right away. The apple had been cooked in peanut oil. She was highly allergic to peanuts. (Can’t locate full story)
Matthew Joseph Deluce, 24, died from peanut allergy after eating at a restaurant in Texas. Partial Story
Karen Lynn MacDonald, 27, died from accidential ingestion of peanut oil. Full Story
Chantelle Yambao, 13, died from peanut and nut allergy after eating a store-bought Nanaimo square. Full Story
Beverley Taylor, 37, died after eating a cashew that tasted like a peanut. She was allergic to peanuts, eggs, dairy, wheat and latex. Full Story
Food Allergy Deaths in 2004:
Jonathan Begley, 9, died from an allergic reaction to food while at school. Full Story
Amanda Mills, 19, died days after having an allergic reaction to a sandwich containing traces of nuts. Full Story.
Alex Baptist, 4, died after being exposed to peanuts at school. Full Story.
Chris Clements, 17, died after eating chocolate that unknowingly contained hazelnut. He had a tree nut allergy. Full Story
Habib Khan, 10, died at school after eating a meal from home. He had asthma and a dairy allergy. He died from an asthma attack, but it is believed to be triggered from the dairy allergy. Full Story
Amy Bauer Topic, 34, died from peanut allergy after accidental ingestion. Full Story
Phillip Heywood, 19, died from a peanut allergy after eating half a portion of curry. Full Story
Emily Givner, 38, died shortly after eating a sandwich wrap. She was allergic to chocolate, nuts, seeds and animals. Full Story
Prasad Gajare, 9, died from milk allergy. Partial Story
Sam Pettett, 22, died from eating a curry dish. Allergy unknow, but died from allergic reaction. Full Story
Raya French, 37, died from tomato allergy after eating spaghetti bolognese for dinner. Full Story
Laura Benson, 19, died after eating a Rice Krispy Treat that unknowingly contained peanut butter. Full Story
Food Allergy Deaths 2003:
Matt Schmauch, 29, died after eating at a Chinese buffet. Full Story
Kate Obertelli, 21, died after eating takeout food containing curry paste. Full Story
Singh Bhamra, 49, died from egg allergy after unknowingly eating cake containing eggs. Full Story
Sabrina Shannon, 13, died from dairy protein that was still present on some school lunch tongs. The same tongs were used to pick up Sabrina’s french fries. Sabrina’s Law took effect on January 1, 2006. Full Story
Food Allergy Deaths in 2002:
Trent A. Hankins, 31, died after touching food containing peanut oil at a dinner party. Full Story
Thomas Egna, 5 months, died from milk allergy after being fed milk in a daycare. Full Story
Richard Sobrino, 38, had an allergic reaction to a candy bar and later died at the hospital. He had a peanut allergy. Full Story
Hamidur Rahman, 14, died from peanut allergy while on a school excursion. Full Story
Food Allergy Deaths in 2001:
Nathan Walters, 9, died on a class field trip after eating a sacked lunch offered to him which contained a peanut butter sandwich and cookies. Full Story
William Gallagher, 16, died after eating walnuts from his home economics class. Partial Story
Food Allergy Deaths in 2000:
Sarah Hubert, 13, died from Milk Allergy. Partial Story.
Nicola Ratcliffe, 18, died from a nut allergy after eating Indian food. Full Story
Luisa Dennis, 28, died from walnut allergy after eating bread that unknowingly contained walnuts. Partial Story
Patrick Maxeiner, 24, death is suspected to have been caused from a peanut allergy. (unconfirmed) Partial Story
Food Allergy Death in 1999:
Joseph Murphy, 18, died after eating pistachio nuts. He knew he was allergic to peanuts, but not aware of his nut allergy. Full Story
Food Allergy Death 1998:
Mark Villa, died after eating a sugar cookie containing peanut butter. Full Story
Food Allergy Deaths in 1996:
Kristen Wyak Norris, 13, died from anaphylactic shock due to complications from asthma and
allergies. She was allergic to nuts. Full Story
Joshua Ramirez, 21, died from peanut allergy after eating a cookie in a vending machine in his dormitory.Full Story
Food Allergy Deaths in 1991:
Johnny Robbins, 16, died after eating an egg roll containing peanut butter. See comments section for full story.
Food Allergy Death in 1989:
Cheryl Winegardner, 10, died from a peanut allergy while on a school field trip. Full Story
Food Allergy Death in 1986:
Katherine Brodsky, 18, died after eating chili from a restaurant that was flavored with peanut butter. Full Story
“Perhaps they are not stars in the sky, but rather openings where our loved ones
shine down to let us know they are happy.”
Best Regards Joseph’s Mom
Love you son! Love and Blessings to you all!